Eb Is The Worst Disease Y

80% SKIN LOSS:  Social media sadly blocks us from showing you the actual truth hidden underneath Lily’s bandages. Lily has severely painful and very deep blisters on 80% of her body due to genetic EB Blistering Skin Disease. Friction or pressure causes blisters making a good hug dangerous and deadly. Her wounds fuse with her bandages causing every bandage change to be terribly painful and bloody. Bandage removal rips her skin causing so much crying and bleeding that Lily has to have regular blood transfusions. It is a very traumatic event for Lily and her mom. Lily is suffering every moment and fighting to survive. *Pictured is Children Medical Hope’ spokesperson Baby Lily